Critical Congenital Heart Disease National Webinar
Date:
December 13, 2019 8:00 am EST
In 2011, Critical Congenital Heart Disease (CCHD) screening was added to the U.S. Recommended Uniform Screening Panel (RUSP). Since then, all 50 states have passed laws or established newborn screening programs, making CCHD screening the standard of care in the U.S. A stakeholder work group including representatives from AAP, AHA, ACC, and AHPL met in Washington, DC, in September 2018 to review the evidence and recommended streamlining the current nationally recommended algorithm. This webinar provides an opportunity to engage and discuss the new recommendations with the authors of a manuscript recently published in PEDIATRICS that contains the recommendations from the stakeholder meeting. Implications for public health programs, the rationale for the recommended changes, and remaining data collection and educational opportunities will all be addressed.
Objectives
- Describe the new nationally recommended algorithm for CCHD screening.
- Describe the rationale for the recommended changes to the algorithm.
- Identify the algorithm’s implications for public health programs.
- Discuss needs and opportunities for CCHD data collection.
Moderators:
- Lisa Hom Wandler, RN Esq, Clinical Program Manager for the Critical Congenital Heart Disease (CCHD) Screening Program, Children’s National Health System, Co-chair, NewSTEPs CCHD Data Response Team
- Amy Gaviglio, MS, LCGC, Former Follow-Up Supervisor Minnesota Newborn Screening Program, Co-chair, NewSTEPs CCHD Data Response Team
Speakers:
- Gerard Martin, MD, FACC, Medical Director of Global Services, Children’s National Health System
- Matt Oster, MD, MPH, Director, Children’s CORPS (Cardiac Outcomes Research Program) Sibley Heart Center Cardiology Children’s Healthcare of Atlanta