Virtual Roundtable on States’ Experiences Screening for Spinal Muscular Atrophy
The initial Spinal Muscular Atrophy Webinar will provide a platform for Newborn Screening (NBS) Programs to share their knowledge and experiences implementing screening for SMA. Speakers will answer questions regarding implementation methods and activities, follow-up best practices, and educational strategies related to SMA.
Audience: Individuals responsible for screening, diagnosing, and treating SMA.
Link to slides: https://www.aphl.org/courses/Documents/2019/588-632-19%20SMA%20Part%201%20slides.pdf
Moderators:
Amy Gaviglio, MS, LCGC, Co-Chair, APHL NewSTEPs New Disorder Workgroup
George Dizikes, PhD, HCLD/CC (ABB), Co-Chair, NewSTEPs New Disorder Workgroup
Speakers:
Sarah Bradley, MS, CGC, Follow-up Supervisor, New York State Newborn Screening
Anne Comeau, PhD, Deputy Director, New England Screening Program, Professor, Department of Pediatrics, University of Massachusetts Medical School
Fizza Gulamali-Majid, PhD, Division Chief, Maryland Department of Health
Jennifer Taylor, PhD, Assistant Division Chief, Maryland Department of Health
Jordan Shover, Public Health Program Manager, Pennsylvania Department of Health
Joshua Featherston, Laboratory Manager (Molecular Unit) Missouri State Public Health Laboratory
Megan Wilde, RN, Public Health Senior Nurse, Missouri Department of Health and Senior Services
Carrie Wolfe, MBS, Laboratory Supervisor, Minnesota Department of Health