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News and Education

Newborn Screening for Adrenoleukodystrophy Symposium Talks

The New York - Mid-Atlanitc Consortium has posted the following Newborn Screening for Adrenoleukodystrophy Symposium Talks on the NYMAC website.  To view these videos, please click the following link.

  • Diagnostic Testing and History of Adrenoleukodystrophy - Ann Moser, BA
  • ALD Management and Treatment - Gerald Raymond, MD
  • Genetic Counseling Considerations of ALD Newborn Screening and Differential Diagnoses - Beth Vogel
  • New York State ALD Laboratory Protocol - Joeseph Orsini, PhD
  • Protocol for Diagnosis and Management Guidelines - Sarah Bradley, MS, CGC
  • Parent and Patient Perspectives - Spenser Barsh 
  • Status of ALD Screening in New Jersey - Scott Shone, PhD
  • Parent and Patient Perspectives - Elisa Seeger 
  • Long-term Follow-up and Educational Materials Group Discussion - Beth Vogel, MS, CGC
  • Review NYS ALD Outcomes - Michele Caggana, Scd, FACMD
  • Status of ALD Screening in California - Bob Currier, Phd