Thanks to exceptional work on the part of the sponsors, Representatives Lucille Roybal-Allard and Mike Simpson and Senators Kay Hagan, Orin Hatch and Lamar Alexander, last night the House passed H.R. 1281, the Newborn Screening Saves Lives Reauthorization Act. The final version of the bill includes a Senate amendment on informed consent.
The bill is now being sent to the President where it will shortly be signed into law.
Additional details can be found linked here.