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Developing a Public Health-tracking System for Follow-up of Newborn Screening Metabolic Conditions

A recently peer reviewed article in the Journal of the American College of Medical Genetics and Genomics aims to examine the importance of newborn screening data collection programs, and how the programs assist in conducting long-term follow-up of children with metabolic disorders.
 
Title: Developing a Public Health-tracking System for Follow-up of Newborn Screening Metabolic Conditions: A Four-state Pilot Project Structure and Initial Findings
Date: December 5, 2013
Authors: Cynthia F. Hinton, Cara T. Mai, Sarah K. Nabukera, Lorenzo D. Botto, Lisa Feuchtbaum, Paul A. Romitti, Ying Wang, Kimberly Noble Piper, and Richard S. Olney
Link: http://www.nature.com/doifinder/10.1038/gim.2013.177